Showing posts with label co-infections. Show all posts
Showing posts with label co-infections. Show all posts

Sunday, 15 November 2020

And now... for Bartonella Symptoms

So, I'm really confident that I actually have Babesia, and I'm pretty sure I also have Bartonella.  For a fun look at Bartonella, I'm going to list out the symptoms as presented in the article, "TOUCHED BY LYME: A close look at six Lyme-related infections."

So, here we go:

Many people have Bartonella or Bartonella-like (BLO) infections in their bodies. They are perhaps the most abundant infections in people because many veterinarians say that 80 percent of all house cats and nearly 100 percent of all hunting cats carry Bartonella microbes. Fleas bite cats and infect them with the Bartonella-like organisms, which are then transmitted to humans when they get bitten by the flea. Bartonella and BLO infections are therefore probably the most common of the vector-borne Lyme disease co-infections.

People who have active Bartonella symptoms have much more pain than people who are manifesting predominantly Babesia-related symptoms. The first thing out of their mouths is usually, “You have to help me with my pain.” They have pain in their joints and the connective tissue around their joints. This joint pain will migrate to other areas of the body. So for instance, patients with active Bartonella might have knee pain, but just when they are about to go to the doctor for the pain, the pain will migrate to the left elbow. The hallmark symptom of Bartonella is sensitivity and tenderness on the bottom of the feet, especially the soles.

I have pain mainly in my hands.  Once or twice I've had pain in my toes, a few times I've had pain in my knees.  But I almost always have pain somewhere in my hands.  Most days it's in the right hand, sometimes the left, sometimes both.  The affected fingers and joints rotate.  Migratory joint pain is not typical of arthritis.  But it's very possible that it's symptomatic of Bartonella.

Generalized pain in the body, or pain that is sharp and severe, is often related to Bartonella. Bartonella can also cause headaches and ice pick-like pain. Both Babesia and Bartonella cause headaches, but Bartonella headaches are worse. A Babesia headache produces more weird sensations in the head and pressure in the head. People with active Babesia infections will say, “I don’t know if I’d really call what I have a headache. It’s more like a pressure in the head.” Babesia can cause migraines as can Bartonella, but Babesia migraines are generally less severe.  Bartonella prefers the occipital areas of the head; the back of the head and neck are generally painful. So pain is a dominant characteristic of Bartonella.

I have pain in my neck and shoulders.  Constant, irritating, muscle pain.  Some days it's really bad, some days it's just an irritation.  But constant muscle-soreness is a problem I've dealt with for the last two years.  And no, I'm not doing anything to account for it.  I'm not sleeping weird on my pillows, or lifting tons of weights.  If I do any activity that causes slight muscle-soreness, I have disproportionately bad muscle pain.  

I defintely had intense headaches last year when I hadn't started antibiotics yet.  I currently have more of the weird pressure and "almost headaches" that sound like they are more related to Babesia than Bartonella.  But I have a lot of pain in my neck, shoulders and also my hands that I think are very likely from a Bartonella infection.  

All of these slow-growing intracellular infections affect the brain but create different symptom patterns, according to which infection is dominant or most active. I see more depression in people with active Babesia but less variability of mood, whereas people with active Bartonella may be irritable and anxious but then “flip over” into depression. Many people with Bartonella infections are misdiagnosed as having bi-polar disorder due to their fluctuating moods; they can easily go from being angry and irritable to being depressed.

I honestly don't know if my memory trouble is more Babesia or Bartonella dominant.  I'm defintely more depressed than angry.  But in the description of Babesia, the symptoms of a dominant Babesia infection included anxiety and FEAR.  I have definitely struggled with anxiety and fear this year.  But also depressino.  So, I'll leave it up to wiser persons than myself to determine of my brain fog and moodiness is related more to Babesia or to Bartonella. 

Bartonella-like organisms can also stay on the surface of the organs and tissues and cause a wide array of symptoms. One such symptom is gastritis. In fact, most cases of gastritis that aren’t caused by Helicobacter pylori infections are often caused by Bartonella, which is the second-most common cause of this condition. It can irritate the stomach so that people lose their appetite and/or get heartburn.

Well, I've definitely had trouble with symptoms that sound like gastritis.  Of course, it could be the effect of months of antibiotics in my system that is causing so much trouble.  It could also be that all my symptoms of gastritis are caused by Bartonella.  I have had a lot of trouble with loss of appetite, heartburn and nausea.  Although the nausea started before the antibiotics, so, there's a good chance it's from the infection and is in fact a symptom of Bartonella.  

Bartonella can cause a low-level, relapsing sore throat. People with active infections will periodically awaken with sore throats and wonder if they are coming down with a cold, but then the sore throat will go away.

I have been waking up with the tiniest hint of a sore throat.  This is obviously not a very good time to be wondering if you are coming down with something.  I have wondered more than once, if I've caught covid-19.  It's a little bit stressful.  To say the least.  

Bartonella irritates the bladder and can cause frequent urination, interstitial cystitis, or other chronic inflammatory conditions of the urinary system.

I don't have other problems with this, but I do have pelvic pain that occurs randomly and it's completely unconnected to my period.  So that's fun.

Bartonella can also cause fevers, but for patients to be able to run a fever, they need to have a relatively functional immune system, so not everyone who has a Bartonella infection will get a fever. Yet people will often feel hot, as if they have a fever, but their body temperature may be low normal.

I did have a very low grade fever for approximately an hour.  (During covid this is not a fun thing to experience even briefly).  I do frequently feel as though I'm hot but I do not usually have a fever.  It feels like I'm constantly gaslighting myself. 

Bartonella can affect the eyes and cause conjunctivitis, or inflammation of the outermost layer of the eye, which results in irritated, dry red eyes, as well as other eye problems.

Bartonella cause more skin-related problems than the other infections. Red bands or stretch marks on the skin called striae are common, as are acne and other skin problems.

I don't really have trouble with my eyes.  I have been having trouble with acne.  I have also been having little red stretch marks appearing.  They aren't large or particularly frequent, but they are showing up.  

Bartonella lives in the liver and spleen where it inflames these organs and compromises their functioning. When the liver and spleen are inflamed, the filtering capacity of the blood is affected, resulting in thick blood. People with Bartonella may have slightly elevated liver enzymes on lab tests. For instance, the alanine aminotransferase (ALT) test score may be just outside of the normal range and high only intermittently. The inflammation that Bartonella causes in the liver and spleen can compromise the body’s detoxification system in a major way, though. When the spleen is compromised, the lymph glands may also become swollen, which then causes the lymph flow to become thick, sludgy and slow.

I have had lots of swollen lymph nodes throughout the last two years.  I've had the swollen lymph nodes noted by the doctor who didn't believe in the possibility of co-infections or post-treatment Lyme.  He kept asking me if I had a cold or whatnot.  

I'm less confident about this one.  But I would be completely unsurprised if I have both Babesia and Bartonella.  


We have a Winner, it's Co-infections!

It's like I walked into a disease wholesale store and couldn't decide what to come down with... so I looked at the cahsier and said, aw, what the hell, I'll have one of each.  

Test results last week:
West Nile, positive.
"But I don't believe that you have it," said the doctor.  "And if you did all you could do is wait to get better and rest a lot.  So we will run the test for co-infections"
Me: "Ok cool."

One week later...
Babesia positive FISH test.
Doctor:  "But we don't know that you have it because you don't get cold sweats at night," (I do have almost all the other symptoms currently)
"Let's do another test for West Nile Virus just to make sure..." says the doctor

Sure, why not?  I mean, we didn't trust the first test.  Let's just run another one we won't trust. 

How many tests do you need to run before you finally trust one of them?  We all know that testing for Lyme and co-infections is impossible and notoriously inaccurate.  So, at what point are you going to just treat me for the symptoms that I have instead of faffing about with more tests?

I'm extremely symptomatic for Babesia.  And it's really likely that I have Bartonella too.  I even have a positive for Babesia.  So, I'm not really sure what we're waiting for.  How many tests do you need to be convinved?  And why didn't we start with the convincing test?  Not run four others we don't trust.  

It's all so frustrating. 

So, the current theory is that I have Babesia and Bartonella, common co-infections with Lyme.  The reason that the antibiotics (doxycycline) helped but didn't make them go away was because Babesia and Bartonella are treated with different antibiotics, stronger ones, and Babesia also needs to be paired with an anti-parasitic.  So, that could explain why doxycycline helps with the symptoms when I'm on it, but doesn't make them go away.

But don't worry, I'm going to run another test for Babesia and a different test for Bartonella.  And just for kicks I'm going to run another test for West Nile Virus.  So, let's see what results we get this time. But it's looking like I'm going to be on the hunt for a new doctor very soon.  If anyone knows of a doctor in the San Diego area who knows how to treat Babesia, or other Lyme co-infections, I'm all ears.

Fun stuff over here!

Wednesday, 4 November 2020

Lyme with a side of Babesia


Sunset at La Jolla Shores tonight was lovely

Tonight as the rest of the world worried about and anxiously awaited the results of the US Presidential election, I was anxious about other results.  I got back my test results today.

Today I received a positive test result on a Babesia FISH test.  This doesn't surprise me in the least because I've looked at symptoms of Babesia and I was already fairly certain I had it.  

I'm hoping, that when I finally get to speak with the doctor on Thursday, I can finally start treating something that has been making me miserable for nearly two years now.  There is a small fear that this result won't be "trusted" either and I'm going to have to either keep searching for doctors or keep running more tests that aren't trusted.  If I may be so bold as to suggest that we all hope the doctors start listening and trusting us when we say what our symptoms are and that they find us all effective treatments for all that ails us.  Having Lyme disease and its associated co-infections is no laughing matter.  (Don't get me wrong, I laugh, but some days it's either that or cry, you know?  I'm hoping for a new diagnosis and treatment course that starts to make me feel better.  

I'm so tired of feeling so miserable.

If anyone happens to be reading this, I could probably use all the prayers and good thoughts sent my way.  

So I took myself to the beach tonight to be out in the breeze and hear the waves endlessly crashing.  I wanted to remember that even the two years I've been fighting all this, is a short amount of time.  At least two years is a short amount of time when you consider the gradual work of the waves eroding the cliffs and the shells crumbling into sand.  Lyme disease is a terribly miserable thing to deal with (co-infections included in this) but I need to remember that it will pass and that the time will soon be distant when I lived this chapter.  I need to focus on the long term and remember that everything will be ok in the end.  I can weather a few more years if I have to.  I need to stand firm like the waves, chipping away at the cliffs until I crumble them and am healthy once more.  I need to harness the strength of wind, blowing gently at times, changing directions, following what I must, but always eroding the cliffs one gust at a time.  Of course, I'd like to bring the whole Lyme cliff down in one terrible storm.  And yet, even if I don't, I'll make it out the other side.  

For more on co-infections, there's an informative article called TOUCHED BY LYME: A close look at six Lyme-related infections. 


For Other Posts about Lyme Disease see the following:

So, I have Lyme Disease

How to Find the Right Doctor for Lyme Disease

How can you be Certain you have LYME DISEASE?

Lyme Disease a List of Symptoms

Lyme Disease the Great Masquerader of Diseases

How Did I Get Lyme Disease?

Memory Struggles with Lyme

I Feel Like I'm Playing Lyme Roulette

Do I have Lyme Disease or West Nile Virus? or a Co-infection?

Thursday, 22 October 2020

Do I have Lyme Disease or West Nile Virus? or a Co-infection?

The Lyme Saga continues...

Today I got test results back that had some very inconclusive and confusing results.  

I took tests to look for the antibodies of Lyme's main culprit, Borrelia burgdorferi, and also a few other things that may have explained all my symptoms.

My tests indicate:

No antibodies for Borrelia burgdorferi

No antibodies for any co-infections of Lyme (Bartonella and Babesia)

No Mycoplasma

Positive for West Nile Virus

The funny thing is that because these tests are so infamously wrong so often, my doctor doesn't believe them to be true.  I must say I agree with him in this case.  He says it's unlikely that West Nile Virus is the cause of my chronic Lyme symptoms because, while it shares many symptoms with chronic Lyme, it is not a chronic problem.  Usually, someone with West Nile has acute and severe symptoms, not chronic ones like mine.  On the off chance I do have West Nile Virus, the way to recover is to sleep a lot, drink a lot of liquids, generally boost the immune system (possibly take anti-viral supplements), and wait for your body to neutralize the virus.  

As far as the tests on Borrelia and Bartonella/Babesia, we don't trust those either.  Testing for antibodies is notoriously inconclusive.  You can get false positives and false negatives.  So, we are going to run tests for the organisms themselves and see what comes back.  

As of right now, I believe that I may have defeated the Borrelia, but I am still fighting off a co-infection that simply didn't show up on this set of tests.  

For more on co-infections, there's an informative article called TOUCHED BY LYME: A close look at six Lyme-related infections. 


For Other Posts about Lyme Disease see the following:

So, I have Lyme Disease

How to Find the Right Doctor for Lyme Disease

How can you be Certain you have LYME DISEASE?

Lyme Disease a List of Symptoms

Lyme Disease the Great Masquerader of Diseases

How Did I Get Lyme Disease?

Memory Struggles with Lyme

I Feel Like I'm Playing Lyme Roulette

Lyme with a side of Babesia